Ana Amariutei – cancer survivor and patient advocate

Patients and patient advocates are increasingly involved in decision-making in healthcare and the setting of research agenda. Knowing how to access scientific literature, correctly analyse and interpret data, hold a scientific argument and to effectively and correctly communicate scientific content have therefore become essential advocacy skills. Ana Amariutei, 22, is a cancer survivor and patient…

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Overview on Patient Centricity in Cancer Care – Frontiers in Pharmacology

A fresh new patient-led study was published on the 5th of October 2017 in Frontiers in Pharmacology (IF4.4), the most cited open-access journal of its kind. The Overview on Patient Centricity in Cancer Care (S. Narbutas et al.) reviews 20 clinical cancer guidelines and showcases the results of patient organisations surveyed in eighteen countries on four continents.…

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Youth Cancer Europe Summit 2017 – Vilnius

In August this year we landed in Vilnius for our latest annual meeting. Over 100 attendees from 22 countries, which included cancer patients and survivors, charity workers, policy makers, patient advocates and industry figures, gathered over the course of three days of presentations, forums and panel discussions to set the Youth Cancer Europe agenda for…

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National Seminar on Long-Term Effects of Cancer Treatment in Young Cancer Survivors [Article]

205 young people who have completed their cancer treatment will participate on December 12th at the First National Seminar on Long-Term Effects of Cancer Treatment in Young Cancer Survivors organized by the Little People Association Romania in Cluj-Napoca. The event, a first of its kind in Romania, will take place from 09.00 – 11.00 at…

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Message against cancer by the young survivors of the disease: Untold Festival, Cluj-Napoca [Article]

About 150 young cancer survivors from 10 European countries, including Romania, wore, Sunday evening at the Untold Festival from Cluj-Napoca, yellow shirts with a message against this illness, making a statement that there is life and hope after cancer. The 150 young people arrived on Sunday at around 19.00 at the Cluj Arena in Cluj-Napoca,…

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