Events Archives | Youth Cancer Europe (YCE)

We’re beyond excited to announce that we’ll be hosting a super event throughout next week in Transylvania, Romania!

Our communications group will be joining forces with a number of professional creatives, influencers and industry leaders for The Incubator, a series of workshops and talks to shape YCE’s outfacing plan for 2019 and beyond!

Full speaker line-up below:

Andrew Powrie-Smith – Communications Director at EFPIA (the European Federation of Pharmaceutical Industries and Associations). As well as being our key-note speaker, Andrew will also host the wrap-up talk for the event’s opening session, helping participants to sum up their leanings in an interactive way before they are put into practice and built into communication strategies.

Collyer Twins – Digital influencers and DJs featured in the likes of British Vogue and Grazia UK, who will be sharing their tips on breaking into the social media world and building an online brand.

Jay McLaughlin – Celebrity/fashion photographer and public speaker Jay McLaughlin will be joining us at our Incubator event to share his insights on what makes good content and how to capture it visually in a way that resonates with your audience.

Lauren Mahon – Outspoken BBC Radio 5 presenter and breast cancer survivor, Lauren Mahon will join us to talk about the success of her award-winning podcast, while sharing her experience in talking about cancer in an open, creative and engaging way.

Fabian Bolin – Fabian is the co-founder of WarOnCancer: a global community of patients, survivors and loved ones, focused on storytelling and content creation as a driver of engagement. After being diagnosed with leukaemia, Fabian began documenting his cancer battle on a blog, which quickly gained global attention.

Charlie Haynes – BBC News journalist and producer for the Victoria Derbyshire programme, Charlie Haynes joins The Incubator to talk to our attendees about telling their story in a compelling way, making it newsworthy.

A big thank-you goes out to our sponsors for making this event possible:

During last weekend’s fourth edition of Untold, Romania’s largest electronic music festival, some of the world’s biggest DJs including Armin van Buuren, Afrojack, Kygo and Danny Avila greeted youth cancer survivors from five different countries in meetings organised by Youth Cancer Europe, who specially flew the young adults in for the occasion.

A group of survivors from around the continent, aged 18-26, were given the opportunity through a social media competition organized by the charity for its network of cancer survivors, which included representation from Spain, Northern Ireland, Poland, Macedonia, and Romania. Afrojack was the first to meet the group backstage during Thursday night, while Armin Van Buuren took photos with the survivors before taking to the stage at Cluj Arena for a mammoth 7-hour headline set that wrapped up the festival. Spanish DJ Danny Avila also wore the “F*** Cancer” bracelet given to him by the group during his Saturday night set, taking to Instagram to share a photo and recall the meeting as “unbelievable”.

youth cancer survivors kygo

youth cancer survivors danny avila

youth cancer survivors danny avila 2

youth cancer survivors armin van buuren

youth cancer survivors afrojack

youth cancer survivors

Previous meet-and-greets organised by Youth Cancer Europe for its network of survivors include Martin Garrix, Hardwell and Dimitri Vegas & Like Mike.

Katie Rizvi, CEO, and Founder of the Youth Cancer Europe Foundation said: “Once again, we were lucky to secure the opportunity to invite youth cancer survivors from across the continent to meet some of their heroes at the incredible Untold Festival in Cluj-Napoca, Romania. Afrojack, Kygo, Danny Avila and Armin van Buuren took the time to speak to each of our guests individually, take photos and sign autographs for them. These are memories that they will cherish forever and we’re always over the moon to bring these experiences to them. A huge thank you goes out from us to the DJs, as well as to the team at Untold for all their help in making this happen. Until the next time!”

Youth Cancer Europe would like to thank the UNTOLD festival for providing access to the festival and to Ecolor manufacturing and the Swedish Consulate in Cluj Napoca for sponsoring the travel and accommodation of visiting youth cancer survivors.

The right to be forgotten provision is an important milestone in European policymaking. However, it is not universally accessible to cancer survivors across Europe nor does it address all their specific issues. Cancer survivors are often disadvantaged for life when applying for essential services such as loans, mortgages or child adoption.

In October, Youth Cancer Europe will be hosting an afternoon event at the European Parliament to discuss access to essential services for all cancer survivors, followed by a networking reception with cancer survivors and a wide range of stakeholders. The event will be hosted by Sirpa Pietikäinen (MEP) and Cristian-Silviu Busoi (MEP), taking place on October 17th (Wednesday) in the European Parliament.

If you would like to join us at the event, please register via the official Eventbrite page here.

PROGRAMME
Youth Cancer Europe meeting on The right to be Forgotten for Cancer Survivors
17th October 2018
5:00 — 7:00 PM 
European Parliament 
Meeting room: ASP 5D, European Parliamentary Research Service Library
Meeting time for participants needing Parliament access: 3:30 pm, Simone Veil Entrance, European Parliament (map below)
Networking cocktails and dinner 
7:15 — 9:00 PM
Hotel Radisson RED, Rue d’Idalie 35, 1050 Brussels
On May 20th we’ll be landing in Brussels for a weeklong event on The Fundamentals of EU Policymaking. Participants from 15 countries will partake in intensive workshops that will look at how the European Parliament works, what role do parliamentary committees play, what is the European Commission’s role and how does policymaking happen and why does it matter to us. This will include a workshop with a former minister of health as well as discussions with experts in global health policy.
The workshops will be followed by visits to the European Parliament where participants will meet with a Member of Parliament to gain practical insights. This will be complimented with an opportunity to grab first-hand experience of all levels of policymaking by meeting with a variety of stakeholders from permanent representations, industry associations, chambers of commerce and civil society organisations; the highlight of which will be our meeting with the team of commissioner Vytenis Andriukaitis (DG SANTE).
The Fundamentals of EU Policymaking takes place May 20th-24th in Brussels, Belgium. Follow our social media channels for more information and updates during the week!

We’ve teamed up with the amazing Untold Festival in Cluj-Napoca, Romania, to once again invite a number of lucky survivors to this year’s festival, taking place 2nd-5th August. 2018’s spectacular line-up includes The Prodigy, Bonobo, Armin Van Buuren, Dimitri Vegas & Like Mike, Afrojack and many more!

We have 5 double passes to give away, scroll down for the terms and conditions and to enter the competition!

Terms and Conditions for YCE Untold Festival Competition

  1. The competition is open to former cancer patients associated with Youth Cancer Europe and any of its network members who are aged 18 years or over, except employees of Youth Cancer Europe and their affiliated companies, their families or agencies or anyone professionally connected with the promotion. The Promoter reserves the right to verify the eligibility of entrants.
  2. To enter, email contact@youthcancereurope.org using the subject line “Untold Festival Competition”, telling us why you would like to attend Untold Festival 2018.
  3. The Promoter reserves the right to decline any entries that are defamatory or in breach of any applicable legislation or regulations.
  4. Out of all email entries, 5 winners will be drawn and given a pair of tickets each to attend this year’s Untold Festival in Cluj-Napoca, Romania.
  5. Closing date for entries is 23:59 CET on 15th March 2018. Any entries received after the closing date will not be accepted.
  6. The winner will be notified by email after 23:59 CEST on 15th March 2018. Winners are required to provide their full names, passport/EU ID card details, date of birth, phone number and email addresses so that they can be contacted by Youth Cancer Europe regarding prize delivery/collection details, travel and accommodation arrangements and in the event of artist meet-and-greet to facilitate access.
  7. Youth Cancer Europe will be providing tickets to attend the festival. Where possible, Youth Cancer Europe will also provide travel and accommodation for the winners. If a winner is unable to attend, they must notify Youth Cancer Europe as soon as possible to allow their prize to be re-allocated.
  8. Judges decision is final and no correspondence will be entered into regarding the outcome of the Prize awarded.
  9. The prize is non-transferable and no cash alternative is available. The Promoter reserves the right to substitute the prize for one of equal or greater value.
  10. The Promoter reserves the right to terminate, amend or extend this promotion in the event of exceptional circumstances outside its control, which affect its ability to operate the promotion.
  11. The winners are required to send photos and short testimonials from their experience at Untold Festival and to allow these to be shared on Youth Cancer Europe’s social media channels and website.
  12. Where artist meet-and-greets are organised by Youth Cancer Europe, the winners agree to have their picture taken for use in press and for social media promotions by Youth Cancer Europe.
  13. Access to artists’ meet-and-greets are subject to availability and are not guaranteed by Youth Cancer Europe. Where winners are granted access, please note that the same cannot be guaranteed for their guests.
  14. In administrating this promotion the Promoter will not collect more of your personal information than absolutely necessary and will only use your personal information for the purposes of this promotion.
  15. The rules of this competition shall be governed by and construed in accordance with the laws of Romania and shall have exclusive jurisdiction in relation to any disputes arising therefrom.

Promoter:

Youth Cancer Europe Foundation
Cluj-Napoca, Romania

*Prize details:

5x pairs of tickets to attend Untold Festival 2018 (2nd – 5th August 2018) (one pair per winner to attend with a guest of their choice)

Access to artist meet-and-greets where possible and as facilitated by Untold and/or the artists directly

Travel and accommodation will only be supplied where possible and are not guaranteed

In August this year we landed in Vilnius for our latest annual meeting. Over 100 attendees from 22 countries, which included cancer patients and survivors, charity workers, policy makers, patient advocates and industry figures, gathered over the course of three days of presentations, forums and panel discussions to set the Youth Cancer Europe agenda for 2018.

Fostering direct contact between different collectives, and ensuring that the voices of patients and survivors become a key part of how treatment and after-care is shaped across the continent were a major part of the discussions. Over the weekend, the sessions included examples of best practice from all over Europe, highlighting the sometimes enormous differences in quality of care offered to young patients across countries; a key issue that Youth Cancer Europe is fighting to change. Panel discussions with inspirational speakers on public policy encouraged young patients and survivors to get directly involved in policy-making and lobbying in their own countries.

Attendees were also treated to a social programme that included evening visits to some of the top landmarks in Vilnius and surrounding area, such as the Vilnius TV tower or the stunning Trakai Island.

Countries represented in the Youth Cancer Europe 2017 annual meeting included Armenia, Austria, Belarus, Bosnia & Herzegovina, Cyprus, Czech Republic, Denmark, Finland, Germany, Ireland, Israel, Italy, Latvia, Lithuania, Netherlands, Poland, Portugal, Republic of Moldova, Romania, Serbia, Sweden and United Kingdom.

Over the past year, we have set up a number of celebrity meet and greets in which our survivors had a chance to share a few moments with some of their idols!

Dimitri Vegas & Like Mike, Martin Garrix and Hardwell are some of the superstar DJs that have shown their support for Youth Cancer Europe in recent months, allowing backstage access to our survivors to meet with them. Not only that, but we got a chance to take some pictures and autographs home with us!

The latest meet and greets in Belfast and Transylvania were picked up by media from all over the globe, including the UK, Spain, Portugal, Russia, and as far afield as the USA, Brazil and Argentina!

Be sure to keep an eye out on our social media channels for future opportunities to attend a meet and greet event in your country. Follow us on Facebook here: https://www.facebook.com/YouthCancerEurope

“We’ve seen through the enthusiastic faces in the room, through the outcomes that we managed to achieve in 8 hours with no structure but with everyone bringing up similar topics, sharing the similar visions that there are so many things that we can do jointly.”

Sarunas Narbutas – Lithuania

  • Advisor to the President of the Republic of Lithuania
  • Lecturer on EU and International Law at Vilnius University
  • PhD Candidate (Networked Governance)
  • President of the Lithuanian Cancer Patient Society
  • Cancer survivor

“I believe meetings like this are important because it helps us get together with survivors from other countries and we can find out what issues other people face and what would be the solution on a European level.”

Floin Barnea – Romania

  • Business owner and lead designer of Digital Etiquette
  • Student at the Faculty of Philosophy and Political Sciences, Iasi
  • Cancer survivor

“I think it’s very helpful to bring people together from across Europe to try and discuss the issues they are facing with cancer despite the differences we face in funding and medical care. And I think this really has helped and we have something we can hopefully build on.”

Mathew J. Cooke – United Kingdom

  • Phd Candidate (Politics), University of Cambridge
  • Member, NHS England’s Teenage and Young People Cancer Clinical Reference Group
  • Member, NCRI Teenage and Young Adult Clinical Studies Group
  • Cancer survivor

“Being in different groups through the meeting, I managed to talk with almost all the participants from the conference and this way we were able to see the problems that are around the whole of Europe Recommended Site. ”

Ana Amariutei – Romania

  • 12th grade student at Emil Racovita National College, Iasi
  • Patient support Volunteer with Little People Romania at the Sf. Maria Children’s
  • Emergency Hospital, Iasi
  • Cancer survivor

“I liked the fact that it was an open space summit and we had freedom to speak, freedom to what meeting we wanted. We could also raise our own issues and it was a very good way to get people together.”

Floin Barnea – Romania

  • Business owner and lead designer of Digital Etiquette
  • Student at the Faculty of Philosophy and Political Sciences, Iasi
  • Cancer survivor

“Probably the most intriguing thing about this meeting was that it was an open summit, I never joined or participated in that king of meetings ever, so that was pretty impressive.”

Tomaz Dezelak – Slovenia

  • History and Theology Student at the University of Ljubljana
  • Author, The Other Me
  • Cancer survivor

“All the ideas were flowing, everybody was talking, everybody was discussing their own problems and their own issues and everybody was giving an opinion so it was a very productive day.”

Emanuel Schipor – Romania

  • Student at the Faculty of Psychology and Educational Sciences, Cluj-Napoca
  • Patient Support Volunteer
  • Assistant to Little People hospital psychologist, Institute of Oncology in Cluj-Napoca
  • Cancer survivor

“I was very impressed by the level of knowledge and the ability to communicate it in a second language to most people. I couldn’t have done that in a foreign language, so I was very much blown away by that. But also the enthusiasm and the engagement everyone had throughout the day, despite the fact we all had very little sleep and too little coffee.”

Mathew J. Cooke – United Kingdom

  • Phd Candidate (Politics), University of Cambridge
  • Member, NHS England’s Teenage and Young People Cancer Clinical Reference Group
  • Member, NCRI Teenage and Young Adult Clinical Studies Group
  • Cancer survivor

“My first reaction was not knowing what exactly was going to happen, I was a little bit afraid of the themes that were going to come up, what everybody is going to talk about, if they were really going to answer to my questions, what I was asking myself about, and I was pretty impressed to see that many people had the same questions as I had. Same themes came up that I was interested in and I was pretty impressed, I really liked it and I think it was really worthwhile coming.”

Francisco Mateos – Spain

  • Cofounder and board member of AAA – Asocoacion Espanola de Adolescentes y
  • Adultos jovenes con cancer
  • Volunteer Coordinator
  • Bachelor in Philosophy and student of Pedagogy
  • Cancer survivor

“I’m excited! For me it was a great experience, I’m grateful for being here, for being invited first of all and for being here amongst all of you, very proud for that.”

George Seremetakis – Greece

  • Double major graduate in Computer Science and Football Coaching
  • Vice-President of Kyttaro, Greek Organization of Adult Cancer Survivors
  • Cancer survivor

“I’m excited! For me it was a great experience, I’m grateful for being here, for being invited first of all and for being here amongst all of you, very proud for that.”

Mathew J. Cooke – United Kingdom

  • Phd Candidate (Politics), University of Cambridge
  • Member, NHS England’s Teenage and Young People Cancer Clinical Reference Group
  • Member, NCRI Teenage and Young Adult Clinical Studies Group
  • Cancer survivor