EU Projects - Youth Cancer Europe (YCE)

EU Projects

Youth Cancer Europe is participating in key EU projects which bring together partners to promote research and ensure improved care and support for young people fighting cancer.

FORTEe

FORTEe: exercise intervention for children and adolescents with cancer has received funding amounting to 6.29 million € from the European Union’s Horizon 2020 research and innovation programme and is a 5 ½ years-long initiative which started in March 2021. The project is being implemented by 16 partner institutions from 8 European countries.

FORTEe promotes exercise in oncology with digital, innovative technologies such as augmented reality to make exercise training more effective, age-adapted and personalised. FORTEe will stimulate translational research to provide access to paediatric exercise oncology as a new health care intervention. As progress beyond the current state-of-the-art, FORTEe has the ambition to implement paediatric exercise in oncology as an evidence-based standard in clinical care for all childhood cancer patients across the EU and beyond.

Find more about FORTEe here

This project has received funding from the European Union’s Horizon 2020 Research and Innovation Programme, under Grant Agreement No 945153.

Website: www.fortee-project.eu


EU-CAYAS-NET

The EU-funded project “EU-CAYAS-NET” will develop a “European Youth Cancer Survivors Network” alongside an interactive virtual platform. The network will foster social networking, peer-support, knowledge-exchange, and aims at improving:

● the quality of life of survivors (including mental health, education & career support, follow-up care and transition)
● the care for adolescents and young adults (AYA) with cancer
● Equality, Diversity and Inclusion (EDI) along the whole treatment and survivorship trajectory.


The activities of the project include peer visits, meetings, training, virtual coworking, social media campaigns, webinars, policy recommendations and national and international events.


Youth Cancer Europe is responsible for Quality Assurance throughout the project as well as leading the work on AYA Care in Work Package 4, ensuring the development of the peer visit methodology and training materials, as well as organisation of the “Peer Visit as research method in EU-CAYAS-NET’” training session in Brussels and the Peer Visits in Belgium, the Netherlands, and Italy.


YCE will also lead WP5 on Equality, Diversity, and Inclusion (EDI) and will focus on improving health and the quality of life outcomes in minority groups by conducting a Desktop Research and Outreach programme. This investigation will contribute to the Equality, Diversity, and Inclusion toolkit that will be delivered to clinicians, patient organisations, and researchers in a later part of the project, through targeted training modules.

In 2024 YCE is responsible for several large events for EU-CAYAS-NET.

Duration: Sept 2022 – Aug 2024

Co-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them.

Website: www.beatcancer.eu


STRONG-AYA

STRONG-AYA: Improving the Future of Young Adults with Cancer receives 10 million euros in research funds from Horizon Europe and UKRI (UK Research and Innovation). The 60-month project started in October 2022, uniting 14 partner organisations from the Netherlands, Romania, United Kingdom, Italy, France, Belgium and Poland.

STRONG-AYA is a new, interdisciplinary, multi-stakeholder European network aiming to improve healthcare services, research and outcomes for Adolescents and Young Adults (AYA) with cancer aged 15-39 years at cancer diagnosis.

The specific objectives of the project include: (1) Development of a Core Outcome Set (COS) for AYAs with cancer; 2) Implementation of the COS in five national healthcare systems (France, Italy, Netherlands, United Kingdom, Poland) and establishment of national infrastructures for outcome data management and clinical decision-making and a pan-European ecosystem; 3) Disseminate outcomes and facilitate interactions between national and pan-European stakeholders to develop data-driven analysis tools to process and present relevant outcomes, establish feedback loops for AYA cancer patients and the healthcare systems, and improve the reporting and assessment of outputs towards policy-makers.

This project has received funding from the European Union’s Horizon 2020 Research and Innovation Programme, under Grant Agreement No 101057482

Website: https://strongaya.eu


smartCARE

smartCARE: Improving Cancer Survivors’ Quality of Life is a 24-month project funded under the EU4Health programme 2021-2027 which brings together 41 partners.

The project aims at developing a ‘Cancer Survivor Smart Card’, to improve the quality of life and health status of cancer survivors. This digital tool will take the form of a mobile application, embracing the core attributes of patient-centred care.

The Smart Card will facilitate patient empowerment, allowing survivors to have an easy access to their treatment summary, being able to share it with relatives and professionals but also having access to a broad range of resources and functionalities enhancing quality of life.

This project has received funding from the European Commission’s EU4Healt Programme, under Grant Agreement No 101080048

Website: coming soon


PROTECT-EUROPE

PROTECT-EUROPE: Vaccinating Europe to protect against cancers caused by HPV is funded under the EU4Health programme 2021-2027. The project is a 24-month-long initiative and is being implemented by the Protecting Europe consortium, which reunites 34 organisations from 17 countries and a wide range of backgrounds, including oncology, general practice, pharmacy, nursing, patients, young people, public health etc. 

The overarching aim of PROTECT-EUROPE is to address the need for a national gender-neutral vaccination programme in EU Member States to grant levels of protection for everyone against the cancers caused by HPV. This will be achieved through the provision of expertise, best practices and guidelines covering the planning and roll-out of vaccination campaigns.

This project has received funding from the European Commission’s EU4Healt Programme, under Grant Agreement 101080046.

Website: coming soon


ONCOSCREEN

A European “shield” against colorectal cancer based on novel, more precise and
affordable risk-based screening methods and viable policy pathways
has received funding amounting
to more than 12.9 million € under the EU’s HORIZON Research and Innovations Actions (RIA). The
project is a 48-month duration initiative and is being implemented by a multidisciplinary consortium of
38 partners, including technical solutions providers, hospitals, Ministries of Health, legal and ethics
experts, and Insurance companies, also actively involving end-users/citizens in all its phases of
implementation. ONCOSCREEN develops a risk-based, population-level stratification methodology for
colorectal cancer (CRC), to account for genetic prevalence, socio-economic status, and other factors.
Within the project, this methodology is complemented by developing a set of novel, practical, and low-
cost screening technologies with high sensitivity and specificity, leveraging artificial intelligence (AI) to
improve existing methodologies for CRC screening and providing a mobile app for self-monitoring and
CRC awareness raising. Furthermore, ONCOSCREEN develops an Intelligent Analytics dashboard for
policymakers, facilitating effective policy-making at regional and national levels. Through a multi-level
campaign, the above-mentioned solutions are tested and validated. For the clinical solutions, a clinical
validation study has been planned, with the participation of 4100 enrolled patients/citizens. To ensure
the adoption of the developed solutions by the healthcare systems, their cost-effectiveness and financial
viability will be assessed.

This project receives funding from the European Union’s Horizon Research and Innovation Programme, under Grant Agreement No 101097036.

Website: https://oncoscreen.health/


ONCODIR

Stemming from the specific risk factors identified with colorectal cancer (CRC), ONCODIR: Evidence-
based Participatory Decision Making for Cancer Prevention through implementation research
project
integrates multidisciplinary research methods from health policy analytics, social and behavioural
science, artificial intelligence (AI) – powered multi-omics and retrospective data analytics, as well as
decision support theories to deliver evidence-based cancer prevention programmes and innovative AI-
powered personalised prevention approaches. The coherent technological ecosystem that ONCODIR is
developing is based on robust AI trustworthiness and privacy preserving principles to deploy
recommendation services that will be specified by citizens, health policy actors and Social Sciences and
Humanities (SSH) experts, during three design thinking workshops. SSH research will address aspects
such as the life-status, nutritional and social habits in tandem with Economics, Sociology and
Local/Regional Cultural Identity and Ethics. ONCODIR’s results will be validated in three Laboratory
Integration Tests (LITs) and three Large-scale Intervention Pilots (LIPs) in five EU member states, with
the active involvement of medical scientists, health care providers, foundations, and consortium
experts.

This project receives funding from the European Union’s Horizon Research and Innovation Programme, under Grant Agreement No 101104777.

Website: coming soon