EU Projects - Youth Cancer Europe (YCE)

EU Projects

Youth Cancer Europe is participating in key EU projects which bring together partners to promote research and ensure improved care and support for young people fighting cancer.

FORTEe

FORTEe: exercise intervention for children and adolescents with cancer has received funding amounting to 6.29 million € from the European Union’s Horizon 2020 research and innovation programme and is a 5 ½ years-long initiative which started in March 2021. The project is being implemented by 16 partner institutions from 8 European countries.

FORTEe promotes exercise in oncology with digital, innovative technologies such as augmented reality to make exercise training more effective, age-adapted and personalised. FORTEe will stimulate translational research to provide access to paediatric exercise oncology as a new health care intervention. As progress beyond the current state-of-the-art, FORTEe has the ambition to implement paediatric exercise in oncology as an evidence-based standard in clinical care for all childhood cancer patients across the EU and beyond.

Website: www.fortee-project.eu


EU-CAYAS-NET

EU-CAYAS-NET: European Network of Youth Cancer Survivors is an 24-month project to start in September 2022, bringing together 10 beneficiaries and affiliated entities as well as 33 associated partners from 25 European countries, to improve the quality of life of children, adolescents and young adult cancer survivors by designing and developing a network Platform to facilitate social networking, provide peer support, have a virtual co-working space and repository of relevant content created during the project.

The project addresses Quality of Life, Adolescent and Young Adult (AYA) Care and Equality, Diversity and Inclusion (EDI). The activities of the project include peer visits, meetings, training, virtual coworking, social media campaigns, webinars, policy recommendations and national and international events.

Website: coming soon


STRONG-AYA

STRONG-AYA: Improving the Future of Young Adults with Cancer receives 10 million euros in research funds from Horizon Europe and UKRI (UK Research and Innovation). The 60-month project starts in October 2022, uniting 14 partner organisations from the Netherlands, Romania, United Kingdom, Italy, France, Belgium and Poland.

STRONG-AYA is a new, interdisciplinary, multi-stakeholder European network aiming to improve healthcare services, research and outcomes for Adolescents and Young Adults (AYA) with cancer aged 15-39 years at cancer diagnosis.

The specific objectives of the project include: (1) Development of a Core Outcome Set (COS) for AYAs with cancer; 2) Implementation of the COS in five national healthcare systems (France, Italy, Netherlands, United Kingdom, Poland) and establishment of national infrastructures for outcome data management and clinical decision-making and a pan-European ecosystem; 3) Disseminate outcomes and facilitate interactions between national and pan-European stakeholders to develop data-driven analysis tools to process and present relevant outcomes, establish feedback loops for AYA cancer patients and the healthcare systems, and improve the reporting and assessment of outputs towards policy-makers.

Website: coming soon


smartCARE

smartCARE: Improving Cancer Survivors’ Quality of Life is a 24-month project funded under the EU4Health programme 2021-2027 which brings together 41 partners.

The project aims at developing a ‘Cancer Survivor Smart Card’, to improve the quality of life and health status of cancer survivors. This digital tool will take the form of a mobile application, embracing the core attributes of patient-centred care.

The Smart Card will facilitate patient empowerment, allowing survivors to have an easy access to their treatment summary, being able to share it with relatives and professionals but also having access to a broad range of resources and functionalities enhancing quality of life.

Website: coming soon


PROTECT-EUROPE

PROTECT-EUROPE: Vaccinating Europe to protect against cancers caused by HPV is funded under the EU4Health programme 2021-2027. The project is a 24-month-long initiative and is being implemented by the Protecting Europe consortium, which reunites 34 organisations from 17 countries and a wide range of backgrounds, including oncology, general practice, pharmacy, nursing, patients, young people, public health etc. 

The overarching aim of PROTECT-EUROPE is to address the need for a national gender-neutral vaccination programme in EU Member States to grant levels of protection for everyone against the cancers caused by HPV. This will be achieved through the provision of expertise, best practices and guidelines covering the planning and roll-out of vaccination campaigns.

Website: coming soon