cluj napoca Archives | Youth Cancer Europe (YCE)

During last weekend’s fourth edition of Untold, Romania’s largest electronic music festival, some of the world’s biggest DJs including Armin van Buuren, Afrojack, Kygo and Danny Avila greeted youth cancer survivors from five different countries in meetings organised by Youth Cancer Europe, who specially flew the young adults in for the occasion.

A group of survivors from around the continent, aged 18-26, were given the opportunity through a social media competition organized by the charity for its network of cancer survivors, which included representation from Spain, Northern Ireland, Poland, Macedonia, and Romania. Afrojack was the first to meet the group backstage during Thursday night, while Armin Van Buuren took photos with the survivors before taking to the stage at Cluj Arena for a mammoth 7-hour headline set that wrapped up the festival. Spanish DJ Danny Avila also wore the “F*** Cancer” bracelet given to him by the group during his Saturday night set, taking to Instagram to share a photo and recall the meeting as “unbelievable”.

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Previous meet-and-greets organised by Youth Cancer Europe for its network of survivors include Martin Garrix, Hardwell and Dimitri Vegas & Like Mike.

Katie Rizvi, CEO, and Founder of the Youth Cancer Europe Foundation said: “Once again, we were lucky to secure the opportunity to invite youth cancer survivors from across the continent to meet some of their heroes at the incredible Untold Festival in Cluj-Napoca, Romania. Afrojack, Kygo, Danny Avila and Armin van Buuren took the time to speak to each of our guests individually, take photos and sign autographs for them. These are memories that they will cherish forever and we’re always over the moon to bring these experiences to them. A huge thank you goes out from us to the DJs, as well as to the team at Untold for all their help in making this happen. Until the next time!”

Youth Cancer Europe would like to thank the UNTOLD festival for providing access to the festival and to Ecolor manufacturing and the Swedish Consulate in Cluj Napoca for sponsoring the travel and accommodation of visiting youth cancer survivors.

Huge congratulations to our winners! We look forward to welcoming our survivors Magdalena (Poland), Jarly (UK), Bojan (Macedonia), Andrea (Spain) and Radu (Romania) and their guests to Cluj-Napoca this August for UNTOLD Festival! Thanks again to the promoters, and if you weren’t lucky this time keep an eye out for future opportunities. More to come soon!

Over the past year, we have set up a number of celebrity meet and greets in which our survivors had a chance to share a few moments with some of their idols!

Dimitri Vegas & Like Mike, Martin Garrix and Hardwell are some of the superstar DJs that have shown their support for Youth Cancer Europe in recent months, allowing backstage access to our survivors to meet with them. Not only that, but we got a chance to take some pictures and autographs home with us!

The latest meet and greets in Belfast and Transylvania were picked up by media from all over the globe, including the UK, Spain, Portugal, Russia, and as far afield as the USA, Brazil and Argentina!

Be sure to keep an eye out on our social media channels for future opportunities to attend a meet and greet event in your country. Follow us on Facebook here: https://www.facebook.com/YouthCancerEurope

The young cancer survivors often suffer from depression and have a hard time finding their place in society. The first study made in Romania on the needs of the people in this category reflects this situation. Over 200 young people participated in Cluj-Napoca at the first national seminar on long-term effects of cancer.

The attention and fertility issues or the fear of relapse were some of the topics discussed at the meeting of cancer survivors and medical specialists.

Emanuel Schip, survivor: “It is good to know what’s going to happen next, so you can prepare yourself.

Theodore Urziceanu, survivor: “The experiences of those who went through something like this could prove to be very useful.

The young people who attended also helped by participating in a study whereby the specialists could better understand the profile and needs of someone who survived cancer.

Katie Rizvi, founder of the Little People Romania: “It is a study that has never been done before. The most important thing the young people are concerned about is their fertility and the possibility of having children after cancer treatment.

The results also show that 20 percent of those who defeated the disease still suffer from chronic pain and experience difficulties in learning, while nearly 60 percent experience emotional difficulties and some of them even depression. 19 percent of those aged over 18 do not work and do not study and 16 percent face discrimination in the workplace.

Rodica Cosnarovici, Head of Pediatric Oncology Department in the Cluj Oncology Institute: “I think the most common problems that they face are psychological and reintegration problems“.

The doctors suggested that the Ministry of Health could also come to their aid, by developing a national pediatric oncology program at a national level.

Gheorghe Popa, pediatric oncologist: “Financing oncology programs for adults does not fully meet the children’s needs, as child cancer patients have special needs.

 

Originally published on 12th Dec 2015 via http://www.digi24.ro/Stiri/Digi24/Lejer/Sanatate/Supravietuitorii+cancerului+isi+cauta+locul+in+societate

205 young people who have completed their cancer treatment will participate on December 12th at the First National Seminar on Long-Term Effects of Cancer Treatment in Young Cancer Survivors organized by the Little People Association Romania in Cluj-Napoca.

The event, a first of its kind in Romania, will take place from 09.00 – 11.00 at the Grand Hotel Napoca, Cluj-Napoca, in the Forum Hall, on December 12th. The seminar addresses young people who have gone through the cancer treatment experience in their childhood or adolescence. Specialists in pediatric oncology confirmed their presence at this event, where they will be answering questions from the young cancer survivors.

“Tumors may disappear, but according to a survey from the Little People Association with young cancer survivors aged 17-31 as respondents, almost 20% of them suffer from chronic pain, have trouble learning and concentrating, while nearly 60% complain of emotional and mental exhaustion, and some of them even depression. Young people don’t have adequate information available to them on how to access social benefits, 19% of them aged over 18 are not working and not studying, 16% report discrimination at work or school. While data from all over the EU clearly shows that this group is at a high risk of developing long-term effects of cancer treatment or secondary cancers, there is no standardized long-term tracking and caring system for young survivors. Many of them go for regular checkups at the pediatrician, but most of them are lost in the whole medical process for young patients. “said Katie Rizvi, founder of the Little People Romania.

The attendees are registered members of the Temerarii Club – the Romanian Community of Young Cancer Survivors® founded by the Little People Association Romania in 2006.

The young survivors will also be delighted to participate for the eighth consecutive year at the Temerarii Christmas Gala. The theme of this year’s edition is Ice Ball. They will celebrate their victory over cancer, in Cluj-Napoca, the city where this community, the largest of its kind in Europe, was founded.

The Ice Ball – Temerarii Christmas Gala – will take place on December 12th, 2015 in the Grand Hotel Napoca, Cluj-Napoca, starting at 19:30. Media representatives are invited to raise a glass of champagne in honor of the young cancer survivors’ victory, at the event’s reception.

What Temerarii means today is more than 400 young people aged 14-30 years from over 123 localities in Romania who, from the moment they won the fight against cancer, have become true heroes, writing and rewriting daily a success story, being a true inspiration for those who now wage the same battle.

The Temerarii community is the founder of Youth Cancer Europe network – a European communication and initiative platform for the young people diagnosed with cancer, developed in 2014, with partners from 15 European countries.

Originally published 11th Dec 2015 via http://galasocietatiicivile.ro/stiri/sanatate/premiera-in-romania-seminar-national-despre-efectele-pe-termen-lung-ale-tratamentului-oncologic-la-tinerii-supravietuitori-de-cancer-15748.html

About 150 young cancer survivors from 10 European countries, including Romania, wore, Sunday evening at the Untold Festival from Cluj-Napoca, yellow shirts with a message against this illness, making a statement that there is life and hope after cancer.

The 150 young people arrived on Sunday at around 19.00 at the Cluj Arena in Cluj-Napoca, wearing yellow shirts with the message “Fuck Cancer” printed on them, planning to attend the performances taking place on the last evening of the Untold Festival, especially the one from David Guetta, Mediafax reported.

Katie Rizvi, founder of the Little People Association, told the journalists that the young people came to Cluj-Napoca to attend [a gathering with members of the Youth Cancer Europe community] and the Annual Summer Meeting for Young Cancer Survivors from Romania.

“From the 2nd to the 6th of August, the Little People Association will bring together in Cluj-Napoca 150 young cancer survivors from Romania and nine other European countries, including Poland, Slovenia, Belgium, Hungary and the Republic of Moldova, for the Annual Summer Meeting for Young Cancer Survivors from Romania, where the Youth Cancer Europe Advocacy Masterclass will also be held. The message on the shirts may seem controversial, but we don’t mean to offend anyone by it. At the same time, we are talking about young people who, when looking back at their lives and all the suffering they went through and yet trying to see it all in a positive light, that they are fighters in a battle with this terrible and cruel illness, sometimes would end up saying: “Fuck cancer” and they should be allowed to express themselves this way. They lost a few years fighting cancer, they went through chemotherapy and radiotherapy, and now they can say that they’re doing well, that there is life and hope after cancer, and that this disease can be defeated, “said Rizvi.

She also stated that the Masterclass is a training session specifically dedicated to young survivors of this disease being an important step for them in becoming ambassadors of all cancer survivors and in conveying an alternate message, a positive one.

“The young people will learn how to spread their message so that it reaches the general public and how to have the courage to share their experiences” said Rizvi.

Daniel Tomai, aged 22, is one of the participants at this event. When he was only 8 years old, he was diagnosed with acute lymphoblastic leukemia.

“I underwent one year of intensive therapy, chemotherapy, radiotherapy, and the disease went into remission. Now I am cured. It’s a terrible disease, and the hospitalization period was pretty rough, but I had a lot of self- confidence. When those around you hear that you have cancer, they already call the priests for the last rites. But our message is one of survival, that you can get over cancer and that your life can go on,” said Tomai, who is currently a student in the fourth year at the University of Medicine in Timisoara.

Oana Rusu, representative of the of the Little People Association in Cluj-Napoca, said that young cancer survivors should have an important contribution in presenting different disease cases, learning to develop their representation and networking skills, as well as their lobbying practices.

The young people attending the meeting are over 18 and they are survivors of various forms of child cancer, such as leukemia, melanoma and cerebral cancer.

Youth Cancer Europe is a European network with partners from 15 European countries, founded by the Little People Association. Some of the network’s priorities are the provision of age-appropriate and accessible treatments in Europe, long-term care and political and legal representation of young cancer patients.

The Annual Summer Meeting for Young Cancer Survivors from Romania will also host the General Assembly of the Temerarii Club, which was founded by the Little People Association in 2006. This club is a community of Romanian teenagers who beat cancer, with almost 400 members. The Temerarii Club became the largest active group of mutual support among adolescents and young adults affected by cancer, as well as one of the most active communities of its kind in Europe.

The Annual Summer Meeting of Young Cancer Survivors from Romania will take place as part of the project Cluj-Napoca 2015 – European Youth Capital.

Photo source: Untold Festival

Orignally published 3rd August 2015 via http://www.wall-street.ro/articol/Social/187092/untold-cluj-mesaj-impotriva-cancerului-lansat-de-tineri-supravie-uitori-ai-bolii.html