mental health Archives - Youth Cancer Europe (YCE)

On October 10, Youth Cancer Europe’s patient advocate Nicola Unterecker, took the stage at the European Commission’s World Mental Health Day Conference, hosted by Stella Kyriakides, European Commissioner for Health and Food Safety. 

This event brought together EU institution representatives, national government officials, passionate patient advocates, and international organizations, all united in their commitment to addressing critical mental health issues.

During the event, attendees engaged in discussions concerning three essential topics:

Mental Health Across All Policies
Promotion & Prevention
Equal Access for All

In her heartfelt speech, Nicola Unterecker shared her personal journey as a young cancer survivor, shedding light on the challenging aspects of life after treatment: “surviving cancer at a young age is a whole different battle altogether. Once treatment finishes, reality hits like a truck. The support system we had during treatments evaporates into thin air. Once on a battlefield, our body starts to heal, but our mind grapples with the aftermath. We find ourselves face-to-face with cancer’s profound impact on our lives.”
Nicki talked about the unseen burden of cancer survivorship, a topic we addressed in our 2018 White Paper when we discussed the short-term and long-term mental health problems and all the psychological effects that are often not recognized by healthcare professionals and are therefore not treated adequately.

Mental Health is one of the priorities set out in our White Paper, calling for action on Financial Discrimination, Cross-Border Healthcare, Fertility Preservation, and more. Read the full White Paper HERE.

Nicki also talked about how she discovered Youth Cancer Europe, the community she never asked to be a part of, but that has become her strength to help her not just to survive but thrive. “In 2019, amidst battling a relapse, I had the privilege of meeting Katie Rizvi, the co-founder of Youth Cancer Europe. My encounter with this phenomenal group of individuals from so many different countries and social backgrounds changed everything. The energy and passion they radiated left me in awe and they welcomed me with open arms, reminding me I wasn’t alone. Instead, we shared an unbreakable bond, fueled by the desire for a better future. As the years went by, our group flourished, our voices grew loud, and our projects expanded. Today, I stand here as living proof that cancer does not define us; it unites us. It brings us together in ways we never thought possible. And with organizations like Youth Cancer Europe and the European Network of Youth Cancer Survivors, we are not only surviving, but thriving” said Nicola Unterecker. 

Watch Nicola’s full speech here

Nicola Unterecker’s presence at the European Commission’s World Mental Health Day Conference served as a reminder of how imperative it is to address and advocate for affordable and accessible mental health support.

Earlier this month YCE patient advocates Nicola Unterecker and Mariana Coutinho have been invited to
take part in a youth policy dialogue towards a comprehensive approach to mental health with
Commissioner Stella Kyriakides, in Brussels.

Nicki and Mariana shared their personal stories and highlight the struggles faced by young people living
with and beyond cancer, talking about loneliness, isolation, health anxiety, concerns about returning to
work, changes to family dynamics, and more, all the while emphasizing the need for free and specialized
mental health services for all young adults with cancer, before and after treatment.

Speaking at the event, Mariana shared her last year’s personal experience of loneliness and isolation
during cancer treatment, pointing out the absurdity of patients having to pay for mental health services
that should be free.

“I tried to seek the help of a psycho-oncologist in a public hospital, but I would have needed to wait for
several months, so I ended up paying out of pocket for private appointments”, stated Mariana.

She called on the European Commission “to improve access to mental health services, through funds
allocations and more innovative services” that would enable cancer patients and survivors across the EU
to receive appropriate and free mental health care.

From left to right in the picture, Nicola Unterecker and Mariana Coutinho.

“The fear of reoccurrence, depression, PTSD, isolation, body image issues due to changes caused by medications, loss and grief are daily struggles for many cancer fighters and survivors, including me. There are so many burdens on us already. Finding mental health support and being able to afford it should not be an additional one” said Nicola in her powerful intervention.

Nicola Unterecker and EU Health Commissioner Stella Kyriakides