The Workgroup of European Cancer Patient Advocacy Networks (WECAN, of which YCE is a member) has just released a list of useful information resources for European cancer patients who may have had access to their treatment (and/or follow-up care) affected by the coronavirus and COVID-19 pandemic.
The situation, individual risks and informational needs however differ from cancer to cancer and from country to country.
Below, you will find a list of the COVID-19 resources provided on the websites of WECAN patient organisations, which may link to additional relevant articles and tools for their specific disease area. You will also find other helpful resources specific to cancer and COVID-19.
Stay safe and please, do reach out to us if you have any questions, concerns, or need someone to speak to. We’re here for you ❤️
Cancer type COVID-19 website of the WECAN member
Brain tumours International Brain Tumour Alliance (IBTA)
COVID-19 information for the international brain tumour community, Link
Chronic Lymphocytic Leukemia (CLL) CLL Advocates Network
COVID-19 statement, Link
Chronic Myeloid Leukemia (CML) CML Advocates Network
Disease information for CML Patients, Link
Lung cancer Lung Cancer Europe (LuCE)
COVID-19 (Corona Virus) and lung cancer, Link
Lymphoma Lymphoma Coalition
COVID-19: Advice for patient groups from house086 in China, Link
Melanoma Melanoma Patients Network Europe (MPNE)
Continuous update on all COVID19 and cancer, plus specific melanoma guidelines/Info, Link
Multiple myeloma Myeloma Patients Europe (MPE)
Publications, tips for patients, global information, national information, Link
Myelodysplastic Syndrome (MDS) International MDS Alliance
Recommendations and resources for members and patients, Link
Link to blood donation appeal, Link
Neuroendocrine Cancers International Neuroendocrine Cancer Alliance
Information Resources for Neuroendocrine Cancer Patients, Link
Sarcomas Sarcoma Patients Euronet (SPAEN)
Resources about the coronavirus in general and especially for cancer patients, including specific information for sarcoma and GIST patients, Link

Other helpful resources specific to cancer and COVID-19

There is a huge amount of scientific and non-scientific resources and articles on COVID-19. This page does not intend to list them all or to be complete. It aims to provide links to the COVID-19-specific pages of European cancer patient umbrella organisations as well as to resources applicable to COVID-19 issues in oncology.

Access and patient advocacy issues to care during the COVID crisis:

  • EURORDIS’ statement on discrimination in critical care guidelines during COVID-19 pandemic, suggesting immediate action and concrete solutions, Link
  • EPF statement on the COVID-19 epidemic (8 Apr 2020), Link
  • Bettina Ryll’s Open Letter to all Cancer Patient Advocates about COVID-19, Link
  • European Cancer Patient Coalition communication and links about cancer and COVID-19, Link

Clinical guidance documents on multiple cancers:

  • EuroBloodNET: treatment and management of infection by Coronavirus (COVID-19) in patients affected by Rare Hematological Diseases, Link
  • EBMT (Bone Marrow Transplant) Recommendations, Link
  • EBMT (Bone Marrow Transplant) COVID-19 & Me webinar,  Link
  • EHA Webinar Series on COVID-19 in HematologyLink

Most relevant scientific articles on oncology (general) and COVID:

  • ECCO News/Resources COVID19 portal, Link
  • ESMO: COVID-19 and CancerLink
  • Cancer Research UK: Coronavirus and CancerLink
  • Union for International Cancer Control (UICC): Cancer and Coronavirus: coping with a double challenge, Link
  • ASCO JCO: Outcome of Oncology Patients Infected With Coronavirus, Link
  • Database on Clinical Trials ongoing for COVID-19 from the Anti Cancer Fund and drug repurposingLink
  • The Lancet French Guidelines article  for Cancer and COVID-19, Link
  • Keep up to date with Covid Regulation, EMA : LINK

The full list was originally published on WECAN‘s website.